Wednesday, June 24, 2009
I know everyone with MS understands what I mean when I say it's too hot. We had a video shoot today, and the added stress of carrying the equipment through the 80º heat was almost too much.
But I must say the video is coming along very well.
We're working on a volunteer video project for the National MS Society, dedicated to recruiting more volunteers and appreciating all of the hard workers out there.
This weekend is Colorado's Bike MS - just a few days away! I'm a little indimidated to be a Crew Coordinator for the first time, but it should be a great weekend. I'm in charge of Team Village and can't wait to see all of the decorations/events teams are planning for their tents. It's going to be wild.
And maybe a little too hot.
Monday, June 22, 2009
Living with MS can be hard, but having friends with MS can help bridge the gap between feeling alone and realizing that we're all in this together.
Here's an article the MS Society published about me in the "Our Space" section of Momentum Magazine - it's just my story, how I got where I am, and a little history about me.
Posted using ShareThis
Wednesday, June 17, 2009
But I still don't feel any closer to understanding how we all cope with the disease.
In a world of Web 2.0 and instant access to information, why don't we have instant access to people? I know, it's the same old story. But I envision a better way.
I want to meet young professionals with MS! I want to meet people who, like me, cope with the illness in extraordinary ways and don't suffer many symptoms because of the advances in technology.
I learned yesterday that Colorado has the highest incidences of MS in the U.S. I just moved here in August, so I certainly don't blame the state for my condition, but it is curious that there aren't more support groups to go around.
Across the nation there are many groups just like this, but it feels like Denver is missing the mark. I plan to start my own support group with the help of the National MS Society - I just hope there's a market for it!